Duckling

Duckling

Both Waverly and Oliver had physical therapy and occupational therapy today. Waverly had a wonderful time. Oliver is still adjusting to his new therapists and spent most of the 2 hours crying. (He took a nice long nap this afternoon when we returned home.) He is so different from Waverly. Wavey has always been so passive and easy going, although she definitely went through the separation phase. Oliver is extremely cautious and does not like to be away from me. Matt likes to call him my little duckling.

Waverly has her yearly MRI on Thursday morning. I tend to get nervous about the sedation, but she did such a stellar job with her EEG sedation last month. I am feeling much less stressed about it. Matt is actually going to take the lead on this visit and take her to Children's for the day. He actually has Thursday and Friday off (because he worked last weekend and this coming weekend), so he is excited to be with her through this procedure.

I am feeling "home sick" this week. My family is in Cape May for vacation. Because of Matt's new work schedule and Waverly's dislike for the beach, we opted not to go with them. I just hate missing out on family memories though. It just makes me that much more excited for our trip there in August with Oliver. It is going to be an incredible trip. We are going to create amazing memories.

Comments

Jenkins said…

Little Duckling, this is so precious.
We will be praying for the MRI, for everything to go smoothly and to have clear results.

July 29, 2009 at 8:54 AM

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.