Wobbley

Waverly had her sedated MRI this morning and she did beautifully. She drifted off to sleep quite easily and the anesthesia wore off quickly. She was extremely restless when she woke up, but otherwise doing fine. She and Matt were both back home by noon. The medicine always causes her to be a bit unsteady on her feet, so we are taking it easy this afternoon by watching some movies. Now we will wait for the results. They should give us an idea of how much her brain has changed within the past year. They are mostly looking for any signs of pressure, atrophy and enlargement of ventricles. Receiving these results is never easy. It is simply a reminder that the disease is progressing and damaging her brain in the process.

Oliver had another successful day of school. As I walked him in this morning, one of the other preschool teacher stopped me to say that Oliver said what sounded like "hello" to her yesterday. And his teacher said that this week has been incredible for him. He is so much more engaging, with better eye contact and participation. She also told me that everyone in the summer program knows Oliver's story and they are celebrating each one of his successes. I am so thankful that the school district listened to our appeal and allowed him to attend the summer program. It has been so beneficial. Tomorrow is his last day and they are having an ice cream sundae party. He is going to LOVE it!!