Birthday Party

Waverly and I attended one of her classmate's birthday parties this afternoon. It was a lovely little get together, perfectly planned for our children. We read stories, played in the backyard, had snacks, opened presents and the cupcakes. Wavey did a beautiful job. 5 of her friends from school were there and I could tell she was comfortable with them, because she was calm. I haven't spent a lot of time with the other moms, so it was nice to chat. One of them asked about Wavey's syndrome, when I mentioned that I had a 3 year-old son with the same condition. I gave her a brief synopsis - developed normally, lost skills, progressive nature of the disease and it's terminal. She had tears in her eyes. I have become so accustomed to the description of the disease, that I no longer flinch when telling people about it. I used to try to hide the grim reality, but I realized that it is much better to be honest and straightforward. I feel better understood and I think people look at the kids a little differently (in a good way). We had a wonderful time.