In Need of Some Zzzz

Waverly has had sleep issues for years.  Since she was 3 years old, she has been waking up in the middle of the night and coming into our room.  When the sleep disturbances began we tried desperately to get her to go back to sleep in her own bed.  At first, it worked.  Then she started coming back out over and over and over again.  We thought we should be firm (like the Super Nanny).  Eventually, we grew so exhausted and frustrated that we would just bring her into our bed.  Once we started doing that she would go right back to sleep until the morning.  As long as we were all sleeping...

Then she started having difficulty falling asleep.  We would have to stay with her until she went to sleep - sometimes up to 90 minutes each night.  Thankfully, the doctors recommended we try Melatonin.  It was a miracle supplement!  All of a sudden she was asleep within 20 minutes.  Life changing...

The past few weeks, things have been getting a lot worse.  She is falling asleep okay, but she is getting up in the middle of the night and not going back to sleep.  Her days are beginning at 2 or 3 am - way too early for a  6 year old girl (and her parents!).  Because of her exhaustion, she is teary and weepy throughout the day.

The disease prohibits a lot of medication that people use to fall asleep and it inhibits certain medication from being effective.  We are in the process of talking with her doctors and specialists.  Hopefully, we can find something to help her sleep.  We are all so tired...