*purple*

purple

I finished the goodie bags this morning. Waverly & Oliver will give one to each classmate next Friday. Now I just have a work on the blurb that will be sent to teachers & staff and work on some signage for the ribbons & lollipops.

Comments

Cubanita said…

we've been following your blog for a few years now and have prayed for you all constantly. Thank you for always sharing your heart and your stories. We cheer you on in your successes and grieve with you in the regressions. We'll be participating in National MPS Awareness Day in honor of beautiful Waverly and Oliver.

I'd never heard of MPS before I met your family but once I did I knew I could never forget what MPS is and what it does. We'll get our boys into gear for May 15th.

Elsie Iudicello

May 5, 2010 at 7:27 PM

Jen said…

These are absolutely beautiful! Will be thinking of you all on May 15. I think it's so cool that Oliver's class is participating. What a great support system God has given you!

May 13, 2010 at 8:07 AM

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.