Sleeping, Yet Crying
Waverly has continued to be a solid sleeper. We have had 4 nights in a row of straight 8pm-6am sleeping. It is fantastic!! Unfortunately, she is still crying a lot. It is mostly in the evenings after dinner, but today she cried on and off for the entire day. I cannot figure out what is causing it. I know this type of behavior is common in children with Sanfilippo, but I am determined to find a reason. I hate seeing her cry. I don't think she is any pain, but I can never be sure since she is unable to tell me.
Comments
Blessings,
Carin
I am so glad that Waverly has been sleeping well but I'm heartbroken about the crying. Sasha started with this behavior around the age of 7 or 8 years old and it's still occurring. I tend to start by addressing potential issues from head to toe. I check out her teeth, lotion her skin, apply Desitin to the diaper area, soak her in the whirlpool tub in case it's her joints and as a final resort I might try Motrin or Tylenol. (I tend to use those as infrequently as possible due to ulceration side effects in the general population). I have to say I have yet to have an ah-ha moment, but I'm not giving up on that! I don't know if any of these ideas are helpful but just wanted to pass them along. I hope this resolves for you all and for Waverly soon! Joanne