Highlights

We had such a wonderful time at Disney World.  We began planning for the trip in late spring, after the kids were both diagnosed and we decided to not go through with the transplant.  I can't believe it is over already.

I think the trip was bittersweet in some ways.  We were surrounded by families and children.  It always reveals just how much we miss out on because of Sanfilippo...just how different our experience was compared to others.

Yet we made some incredible memories.  Waverly thrived with all of the sensory stimulation.  She was saying some new words, smiling and laughing.  Many times she just sat content as a parade went by or a show went on...but she was enjoying herself.  Oliver loved every moment.  Everything was an adventure for him.

Some highlights:

*Mickey Mouse dancing with Waverly at Chef Mickey's

*Waverly running up to Pluto

*Riding Big Thunder Mountain Railroad with Wavey - she giggled the entire ride

*Oliver clapping for the show in front of the castle

*Riding Dumbo with the kids

*Oliver's smile on the carousel

*Waverly saying "drive, drive!" while driving the cars

*Oliver wearing his Mickey Mouse ears

*Oli signing "eat" every 5 minutes (he loved the treats)

*Meeting the Pooh characters

*The kids enjoying the bubbles at the Playhouse Disney show

*Christmas party on Main Street