This morning I read an article about David Cameron. He is a politician in the UK whose 6 year-old son passed away yesterday. When his son was diagnosed with his disabilities a few years ago, Cameron said it hit him "almost like mourning. You're mourning the gap between your expectation and what has happened." I thought that was so beautifully stated.
I had a meeting with Waverly's teacher and support team this morning. All of the specialists shared their experience with Wavey and results from the developmental testing they administered with her. Every time I hear the words she tested at a 0-6 month level or 6-12 month level, I just want to weep. I know what they are saying it true, but those words are very powerful and they hurt. I hate that my beautiful little girl is slipping away. I do feel like everyone loves my little Wavey and they all talked about how smitten her classmates and teachers are with her. Her greatest strength is how much she enjoys being around everyone. I am so proud of her.