Meet the McNeil Family

Meet the McNeil Family

Monday, March 23, 2009

Seizure

Well, the anniversary of Waverly's diagnosis came and went.  I think the anticipation was worse than the actual day.  I spent some time remembering that day in an exam room at CHoP.  I remember thinking that we couldn't handle the diagnosis, but we have and we will.

It was a just a regular day for all of us, ending with a road trip to PA to visit my family.  My sister and her family came down from NY, so we had a full house.  It was great to be with everyone and the kids loved all of the attention.  On our drive home we stopped by a friend's house and had a wonderful dinner with them.  Katie and Neil have been incredible and created such a comfortable and safe place for Waverly & Oliver.  It was wonderful!!

Very early this morning, however, Waverly had her first seizure.  We were told by the specialists at UNC that she would most likely begin having them this year.  Even though we knew they were inevitable, it was still a shocking and frightening experience.  It was very short, only about 10 seconds.  It happened while she was sleeping in our bed, so she was safe and received lots of cuddles when it was over.  I was up for hours afterwards - it was very scary for me.  I suppose this is going to be yet another thing we will adjust to as a family.

8 comments:

Penny said...

Shannon I am so sorry to hear about Waverly's seizure. I just breaks my heart what this disease is doing to our children. Even though I have not yet met Waverly, I feel like I already know her because she reminds me so much of my Hannah. please know that your family is in my prayers and I think about you all every day. Please know that I am here for you. Lots of hugs!

Valerie Nelson said...

I'm so sorry for this terrifying experience, Shannon. I am sure, though, that those cuddles were very comforting for Waverly. She and Oliver have two very amazing parents. Wishing you lots of strength and sending you lots of love.

-Valerie

Christy said...

I'm so sorry. I find seizures to be so frightening as well. Thinking of you this evening.

Pamela @ Frugal Vet Tech said...

Oh, how scary! I've only seen dogs have seizures and that was scary enough. I can't imagine what it would be like to see your child go through that :(

Joanne said...

Hi Shannon,

I hope you are doing OK after the scare of Waverly's seizure. They are just so frightening and it's so emotional to see one's own child have one. I've been thinking about you a lot over the past day and hope you and Waverly are recovering and doing well. Joanne (Mom to Sasha)

Carrie said...

I know seizures can be scary...but the first one is the worst. Not knowing what to do and waiting to see what happens next...
Overwhelming for sure.

I just wanted to check in and see how things were going today.

angi said...

Just letting you know that I am lifting your family in prayer tonight...

Laura said...

Rough, rough, rough.

The lines that you just wrote: "I remember thinking we couldn't handle...but we have and we will," reverberate throughout these day-to-day experiences.

Praying for you that our Lord will keep giving you the grace to utter those lines again and again.