Well, the anniversary of Waverly's diagnosis came and went. I think the anticipation was worse than the actual day. I spent some time remembering that day in an exam room at CHoP. I remember thinking that we couldn't handle the diagnosis, but we have and we will.
It was a just a regular day for all of us, ending with a road trip to PA to visit my family. My sister and her family came down from NY, so we had a full house. It was great to be with everyone and the kids loved all of the attention. On our drive home we stopped by a friend's house and had a wonderful dinner with them. Katie and Neil have been incredible and created such a comfortable and safe place for Waverly & Oliver. It was wonderful!!
Very early this morning, however, Waverly had her first seizure. We were told by the specialists at UNC that she would most likely begin having them this year. Even though we knew they were inevitable, it was still a shocking and frightening experience. It was very short, only about 10 seconds. It happened while she was sleeping in our bed, so she was safe and received lots of cuddles when it was over. I was up for hours afterwards - it was very scary for me. I suppose this is going to be yet another thing we will adjust to as a family.