IEP

I had Waverly's IEP meeting this morning. It went well.  I felt understood and that felt wonderful.  They listened as I gave a brief synopsis of Sanfilippo and I provided them with additional research & literature to read.  I really believe that with some understanding of the disease, they will be able to be much more effective and considerate with Waverly.

I didn't get the one-on-one aide that I was hoping to get.  However, there is now a floating aid assigned to her during playground time.  They are also going to work with some assisted communication devices to help her in class.  I am hopeful that with an FM system, Wavey may be even more successful in class.

I am also working on getting some private therapy services in place for Waverly.  I think I have it set up, I am just waiting on insurance to respond with coverage details.

Everyday something new comes up.  I am working with a case manager to see what waivers we are eligible for.  This is going to be a long and difficult process, but I am ready to tackle it.