Tonight was difficult. I had a message from Waverly's teacher that she was throwing everything she could get her hands on and chewing all sorts of new objects. She said Waverly was very challenging today. Based on what I saw since she came home from school, I agree. Wavey was trying to stand on the backs of sofas & chairs, knocking over lamps and tables, and she was throwing a lot of toys.
We also have noticed over the past few weeks she is tripping and falling much more often. (Her teacher reported seeing the same change.) And tonight, I was trying to engage her in some play. When I gave her a tube that expands when she pulls it, she wasn't even able to grasp it tight enough to hold onto it. It just kept slipping through her fingers.
That is how I feel right now. Like Waverly is slipping through my fingers. I am afraid that we have reached another point of decline and regression. That is the awfulness of this syndrome. The child plateaus along and then all of a sudden there is a loss of skills. Just when you begin to be accustomed to the behaviors, things change.
I am praying for a miracle tonight.