Meet the McNeil Family

Meet the McNeil Family

Friday, November 21, 2008

Change

Tonight was difficult.  I had a message from Waverly's teacher that she was throwing everything she could get her hands on and chewing all sorts of new objects.  She said Waverly was very challenging today.  Based on what I saw since she came home from school, I agree.  Wavey was trying to stand on the backs of sofas & chairs, knocking over lamps and tables, and she was throwing a lot of toys. 

 We also have noticed over the past few weeks she is tripping and falling much more often.  (Her teacher reported seeing the same change.)  And tonight, I was trying to engage her in some play.  When I gave her a tube that expands when she pulls it, she wasn't even able to grasp it tight enough to hold onto it.  It just kept slipping through her fingers. 

 That is how I feel right now.  Like Waverly is slipping through my fingers.  I am afraid that we have reached another point of decline and regression.  That is the awfulness of this syndrome.  The child plateaus along and then all of a sudden there is a loss of skills.  Just when you begin to be accustomed to the behaviors, things change.

I am praying for a miracle tonight.

14 comments:

Lisa said...

I'll pray for a miracle as well. {{Hugs}}

fern said...

Praying with you.

sarahdv17 said...

I'm praying with you too.

Christy said...

I'm praying too.

Sarah said...

praying...

Scarlet and Gray said...

What a heartache. Praying for you.

Sarah said...

Shannon - We are praying with you!

Jawn said...

I'll pray with you too.

kristi_temple said...

We are agreeing with you in prayer.

Jan said...

I too am praying.

Bennett said...

Praying with you!

I found your blog through Kamera's facebook page.

Frugal Vet Tech said...

Awww, I'm sorry. My heart is just breaking for you. (((hugs))) to you.

Anonymous said...

Praying that the Holy Spirit will still grant His fruits of peace, patience,...even in the midst of the disease!

Jen said...

Praying with you!