I spent time this afternoon researching these arm restraints they want to use with Waverly.  Part of her condition means she chews on EVERYTHING and I truly mean EVERYTHING.  So whenever they want to do a craft or project in the classroom she puts the supplies in her mouth and that could be dangerous.  The school OT wants me to approve the use of arm restraints to keep her from bending her elbow, therefore unable to put anything in her mouth.  I just feel very uncomfortable restraining her like that.  Chewing isn't a behavioral issue, it is an actual need.  Both our private OT and pediatrician were not supportive of the restraints.  I asked other Sanfilippo moms who felt the same way.  The school says they tried them on Waverly and she didn't seem upset wearing them and was actually playing with the sensory items, instead of putting them in her mouth.  I think that I am going to arrange to observe and talk with our specialist about it.  So many decisions to make and I feel like I have no idea what I am doing!

I have distracted myself a bit by getting some Christmas shopping done.  It is VERY difficult to shop for Wavey.  She no longer plays with anything, so I ordered her some of her favorite shows on DVD.  I also got Oliver a Thomas train set.  He loves them at our doctor's office, so hopefully he will enjoy having his own set here at home.


fern said…
I'm so sorry you're having to deal with these sorts of decisions.

Why can't Waverly have toys that are meant to be chewed on? Are her teeth too hard on them, and they come apart too quickly?

I know you'll work out the right thing to do. I am thinking of you, and praying for you.
Anonymous said…
I am blog reader and have never commented before. I say go with your gut! You and only you know what is best for your children.


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