A student in CA made a documentary about the mother of 2 children with Sanfilippo. It is called "Courage". They are having a premiere this weekend in Orange, CA for anyone in the LA area. All proceeds are going to the MPS Society. You can find more about it at www.couragemovie.com. You can also view a trailer for the movie at www.vimeo.com/2559857. It brought me to tears.