Exhausted

Exhausted

We are all exhausted. Last night Oliver had a sleep study at Children's Hospital. His ENT wanted it done before we have his tonsils and adenoids taken out. Oli is a snorer and he is awake a lot during the night. All things considered, he did beautifully. He slept most of the night with 18 leads taped to his head and chest, and a tube in his nose. I was up throughout the night adjusting the tube and keeping his hands from pulling everything off. I am hoping they were able to get all of the information they needed and we can schedule the surgery soon.

Waverly had a rough day at therapy this morning. She had been doing such a beautiful job, but today she cried and protested throughout her session. I am interested to see how she did at school.

Comments

Jen said…

Wow, what a day for your family! Maybe everyone will be worn out and rest well tonight.

March 25, 2009 at 3:31 PM

Mystic Thistle said…

I hope a good sleep is had by everyone tonight.

March 25, 2009 at 5:15 PM

Pamela @ Frugal Vet Tech said…

I'm impressed he slept through most of the night! I always thought that if I had to go to a sleep study, I wouldn't be able to sleep because of all the leads and then because it would be a new location and such.

I hope you can all get a good, restful night of sleep tonight.

March 26, 2009 at 12:14 AM

Laura said…

That sounds like a nightmare experience for you all to do the sleep study - but now I know that you get the results back fast (I'm reading backward).

April 4, 2009 at 1:44 PM

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.