Sweet Carolyn

Sweet Carolyn

Last night I found out that a Sanfilippo family is about to lose their precious little girl, Carolyn. Her mom posted a beautiful note on a forum for MPS families. Sweet Carolyn is 16 years old and coming to the end of her journey. I spent about an hour last night sobbing for their family and wishing that there was something I could do to prevent our beautiful kids from leaving this earth much too soon. Carolyn's mom asked for people to keep them in your thoughts and prayers. She also asked for all of us to give an extra hug to our kids, take the trip the zoo or the playground, or enjoy the beautiful spring weather with your family. Remember Carolyn today and do something lovely in her honor.

Comments

aprilfoolwed said…

We will keep Carolyn and her family in our prayers. There really are no words that can really comfort, are there?

March 6, 2009 at 8:32 PM

Misty said…

Praying for Carolyn and her family, Misty www.miracle4will.com

March 7, 2009 at 12:35 PM

Jen said…

I will pray for Carolyn and her family.

March 7, 2009 at 11:14 PM

Pamela @ Frugal Vet Tech said…

Prayers are being said for Carolyn and her family. How heartbreaking :(

March 8, 2009 at 3:08 AM

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.