Crying

September 28, 2008

Crying

Waverly has been crying a lot the past 5 days. She is weeping and for no apparent reason. We aren't sure if this is a new phase or stage in her disease, or if she is hurting. It is terribly painful to see her respond like this.

We had the pleasure of going to a friend's home tonight. She hosted a little get together for 5 families who all spent time together in London. 4 of the families have relocated to the DC area and 1 was just in town visiting. It was wonderful to be around friends. They have watched Oliver grow from a little baby into a big-bellied toddler. They have also seen the changes in Waverly and have supported us through the entire process.

I am so glad we are back.

Comments

Jen said…

I'm so sorry Waverly is having such a bad time lately. I will be thinking of you and of her.

September 28, 2008 at 11:02 PM

Mystic Thistle said…

I'm sorry about the crying. Our Clay does this from time to time and it is so hard because he can't tell us what's wrong. So I feel for you and I'll be thinking of you both very much.

September 29, 2008 at 7:26 AM

Kathy Porter said…

It is your total honesty in conveying your feelings that causes me to stop and pray hard for your family. I agree - you are a very strong and courageous mother and you have a huge heart to fill both your children's needs. You are causing so many others to really care how you face each day and each step. God bless your week ahead with many good steps and challenges faced head on.

September 29, 2008 at 11:55 AM

Welcome to Holland

By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.""Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."But there's been a change in the flight plan. They've landed in Holland and there you must stay.The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.