Matt and I had a meeting today to finalize Waverly's IEP for kindergarten. We had to decide on placement and services - really the 2 most difficult areas of the IEP. Everyone was on board with our preference of having Waverly attend a local elementary school that has a moderate-severe special needs self-contained classroom. She will attend all day, although a half-day option is there if a full day is too much for her. We have worked out that she will receive OT, PT, Speech, HI, assistive communication and audiology services (whew!). I was also thrilled to hear that they are going to hire a 1:1 assistant for her next year as well. (I thought this was going to be the most difficult item, but everyone agreed that she needs that assistance for her safety.) She is also going to attend the summer program they have for 6 weeks in July & August, with a 1:1.
It was such a wonderful meeting. Everyone in the room understood the unique nature of Waverly's disease. I could sense their compassion and love for her. The principal of the school where she will attend was amazing!! Matt and I were both instantly impressed. She has observed Wavey in her preschool setting and truly wants to create the best environment.
I have heard horror stories from other Sanfilippo parents regarding IEPs and placement. We chose this area of Virginia specifically for their special education program. We are so thankful that we did! I have always said it is the little things. This meeting was no exception. There was no fighting, no battle for understanding, no additional stress. I am confident that Wavey is going to be in a wonderful kindergarten classroom, with people around who will support her, keep her safe, make her smile and allow her the opportunity to enjoy life.
Of course I handed them all an MPS Awareness ribbon at the end.